Woman Fights Incurable Illness
Liz Jones sits on her couch typing on her I-PAD what she wants to say because she can no longer talk due to her illness.
"I feel like A-L-S is probably the worst diagnosis one can get because there is no hope unlike cancer or AIDS."
Jones was diagnosed with Progressive Bulpar Palsy a form of Amyotrophic Lateral Sclerosis or ALS in October of 2010. ALS is most commonly known as Lou Gehrig’s disease after the famous New York Yankee baseball player. According to the ALS Foundation, the disease affects the neuron system. The brain remains strong but the body's muscles weaken and twitch until the person can no longer move. Jones is already feeling these affects and relies on her husband for help.
"It has made me much more dependent on other for everyday things,” she said.
Jones husband, Earl, helps her out from assisting her getting dressed in the morning, to walking around the yard. Due to Jones condition, he can't travel very far away from her.
"I'm pretty much confined within ten to fifteen minutes around here," he said.
As Jones’ husband is restricted to the area, she and others diagnosed with ALS are trapped inside their body. According to the ALS Foundation, about 5600 people in the U.S. are diagnosed with ALS each year. It can affect anyone and doctors still don't know what causes it. About 20 percent will live up to five years or more but only five percent will survive 20 years. Jones knows the stats and says she is hopeful.
"My goal is 10," she said.
Her loved ones are her foundation in fighting this illness.
"My family especially my husband are my biggest supporters,” she said “It's for them that I want to live."
CVS Pharmacy has an in store fundraising campaign going on until Saturday called, "Advancing Medical Research." All proceeds help find a cure and improve the quality of life for those living with ALS.
Follow this link to donate.